Wednesday, April 2, 2014

Tommy

I was still in the hospital holding my newborn son when the doctor asked me what I had named him. "Thomas Joseph Marcello," I proudly answered. "Thomas Joseph Marcello," she repeated, nodding her head and smiling, "that sounds like the name of a president!" My son, I glowed inwardly, a president. Why not? The possibilities were endless for my baby!
 
The official diagnosis came three years later, but I had come to know it in my heart before I heard it spoken by the professionals- autism. I was beyond devastated. The life I had envisioned for my child was not going to happen. And so began years of research, therapies, meltdowns, Boardmaker pictures, and watching my son grow up alongside his typically developing peers in a manner that was most untypical. In one of my searches for support on the internet I found an anonomous quote that truly changed my perspective. "Love me for who I am instead of wondering what I might have been like." I let go of the concept of who I wanted my son to be and began to focus only on who he actually was.
 
What I came to realize is that my son Tommy is truly special. He has a heart of gold and a smile that warms the room. He exudes happiness and makes everyone around him smile. Tommy makes improvements every day because he always tries his best. He has earned the respect of his teachers and therapists. I wish I was half as popular as he!
 
I admire the young man he has become and I am so grateful to be his mother. While "Thomas Joseph Marcello" may never be the name of a president, this proud mother maintains that the possibilities are still endless for her son!

Autism Awareness Day

My son is highly functional, but because of his autism, his days are full of numerous challenges, unrecognizable to you and me, that he must overcome while still managing to look "normal" to an indifferent and judgmental world. Autism has shaped our family routines and defined the depth of the relationships that we have with each other, our extended family members, and our friends. Autism has often been the decisive factor in determining where we can and cannot go and if we can go, how we will participate. Autism creeps into our minds as we dream about what the future may hold. Autism reeks havoc on our expectations, forces us to adjust and accept, hardens our resolve, strengthens us and exhausts us. Autism is there when we go to sleep at night and is waiting for us when we rise in the morning. Autism is an enemy that we must make peace with in order to enjoy the many blessings we have been given.  Autism is a force to be reckoned with, day in and day out, week after week, year after year. For families like mine, everyday is "Autism Awareness Day."